From wheelchair to walker

Katherine Gaudio, in her walker, assisted by physical therapist Erin Meineke.

While virtually all of Matheny’s students and patients spend most of their lives in wheelchairs, they often spend time in a walker during physical therapy to increase their endurance and strengthen their muscles. Occasionally, a surprising breakthrough occurs during these physical therapy sessions.

Katherine Gaudio is an 11-year-old student who decided she didn’t want to return to her wheelchair and expressed her desire to make her posterior walker her main mode of mobility. “She is her own best advocate,” says Erin Meineke, DPT, her school physical therapist. “She made her opinion known.”

The hardest adjustment, Meineke says, was transitioning from a physical therapy session to utilizing the walker all day long because she didn’t realize how much energy it would take to use it all day. “In the beginning she was very tired. But now she’s had her walker for three months, and she’s stronger and more confident and not as tired at the end of the day,” she says.

Gaudio has used the walker on trips to Wal-Mart and to her Girl Scout meetings. And she’s also riding a regular bicycle with training wheels. She can safely transfer in and out of her walker, with supervision; and she can also safely sit in a regular chair, without a safety belt, in class or in the dining room or her bedroom. “Walking,” says Meineke, “is something the therapists are always working on, but it’s usually walking with an aide. Katherine didn’t want to be done walking after a therapy session.”

The whole transition, she adds, actually took a couple of years, but “she has always been a strong advocate for herself. She broke all the rules.”

Geri Brewer and her daughter, Rasheedah Mahali.

“We go to 60 places, but you guys are Number 1.” With those words, Tim McLoone, founder and leader of Holiday Express, launched this year’s holiday concert at Matheny. And the theater in the Robert Schonhorn Arts Center rocked with the sounds of “Nobody Ought to be Alone on Christmas” and “Santa Claus is Coming to Town.”

The energetic Holiday Express singer Pam McCoy was everywhere, offering her microphone to Matheny students, patients and their family members. Bedminster’s Byron Smith sang his original composition, “Santa’s Comin’.” And Geri Brewer, mother of adult patient Rasheedah Mahali, became the second Matheny parent to be part of the band, performing a solo on “This Little Light of Mine,” prompting McLoone to say, “The light keeps shining on all these wonderful people, the dedicated caregivers at Matheny.” The other Holiday Express parent is trumpeter Jim Yedloutschnig, father of adult patient, Alicia Yedloutschnig.

Holiday Express’ mission is to deliver music, food, gifts, financial support and friendship to those in need during the holiday season. The organization is made up of about 1,300 volunteers including more than 80 professional musicians. Members of the Matheny Choir performed with Holiday Express during the concert, and McLoone announced that members of the choir will again be performing at the eighth annual Holiday Express Benefit Concert on December 20 at the New Jersey Performing Arts Center (NJPAC) in Newark.

Pam McCoy and Matheny student Bianca Mathis.

Odette Taft and Gary Eddey, MD, Matheny vice president and chief medical officer.

Dr. Lawrence T. Taft was a member of the Matheny medical staff for 13 years before he died in 2008. At that time, Matheny changed the name of its annual Service Awards to the Lawrence T. Taft Awards, in honor of the man who helped establish the field of neurodevelopmental pediatrics.

Dr. Taft founded the Children’s Evaluation and Rehabilitation Center at Albert Einstein College of Medicine of Yeshiva University in the Bronx, and was the first chairman of the Department of Pediatrics at Robert Wood Johnson University Medical School where he established the Institute for the Study of Child Development.

Dr. Taft’s widow, Odette Taft, remembers how much her husband “loved going to Matheny. He loved working with the kids, and he loved the parents as well. He would always shake the child’s hand. That way he felt they wouldn’t be afraid of him. And he always made a point of telling the parents, ‘You’re doing a good job.’ We’d get letters from families all the time.”

Herbert J. Cohen, MD, professor emeritus at Albert Einstein’s Department of Pediatrics, recalls that Dr. Taft, his mentor,  “pushed for the team approach. He brought together a number of people from different departments for an interdisciplinary approach.” That approach, adds Odette Taft, “is now an established, respected form of care.”

When Dr. Cohen arrived at Einstein in 1964, Dr. Taft trained him in what became developmental pediatrics. “Larry,” he says, “was a good observer of children’s behavior and development and an excellent teacher. A number of the people he trained went into leadership positions in the field.”

Dr. Taft was also a mentor to Gary Eddey, MD, vice president and chief medical officer at Matheny. Working with Dr. Taft, says Dr. Eddey, was “pure pleasure. Until the very end — three months before his death — he was training the medical staff and me how to provide care for the patient population with complex disabilities.”

Odette Taft remembers a trip to China. “One of the Chinese doctors came over to him and said, ‘I’ve read your papers.’ We were in Greece, and a woman brought her child to see him. He was so gratified that people thought so highly of him.”

Benita Kiell, left, helps Lorrie Pearson select a print.

Benita Kiell of Far Hills, NJ, has been volunteering at The Friends of Matheny’s Second Chance Shop for about three years. The shop sells gently used items, such as clothing, books, artwork and household items, to raise money to enhance the quality of life for Matheny’s students and patients. Kiell originally heard about the shop through a work colleague of her daughter whose son was a residential student.

“It gives me a good feeling to be working for a good cause,” she says. One of her regular customers, Lorrie Pearson of Basking Ridge, points out that she has an additional reason for shopping at Second Chance. “You never know what you might find,” she says.

“Frederick Marine,” by Mike Arin.

A “munny” is a do-it-yourself vinyl figure with movable joints, made by a company called Kid Robot. It has become very trendy, as artists try to come up with unique ways of decorating the dolls, using pens, pencils, markers, paint and other materials.

Speakeasy Art Gallery in Boonton, NJ, is presenting a “Munny Makers” exhibit from December 7-30, and three artists from Matheny’s Arts Access Program—Mike Arin, Jenny Cox and Alex Stojko—have had their munnys accepted in the show.

“Ellen,” by Jenny Cox.

Speakeasy Art showcases the work of both international and local contemporary artists. It holds a new reception on the first Friday of every month. Arts Access enables people with disabilities to create fine art, assisted by professional artist-facilitators.

Danny Teresi and his parents at last year’s Holiday Express concert.

The holiday season is heating up at Matheny, starting with “Fruitcake & Mistletoe,” the annual Holiday Concert presented by the Matheny Choirs. This year it will be on Wednesday, December 5, at 2 p.m. and Thursday, December 6, at 7 p.m.

Then, on Sunday, December 9, Holiday Express, an all-volunteer band that gives more than 50 concerts between Thanksgiving and Christmas, will make its 12th visit to Matheny. For Tim McLoone, founder and leader of Holiday Express, coming to Matheny is like visiting old friends. He knows many of the students and patients on a first-name basis and chats with them during the concert. Holiday Express’ mission is to deliver music, food, gifts, financial support and friendship to those in need during the holiday season. The musicians also play every spring at the Matheny Prom.

On Saturday, December 15, it’s Lunch with Santa from noon to 1:30 p.m. in the Matheny children’s dining room. Families of all of our students are invited to attend all of the holiday events. Just contact Linda Frankshun, director of therapies, at 908 234-0011, ext. 226.

Tim McLoone, leading the band last year.

Dancer/choreographer Dion Alston, performing “Every Teardrop is a Waterfall” with dance facilitator Elizabeth Zelesny.

When Robert Schonhorn was president of Matheny in 1993, he posed the question: “Can people with disabilities create fine art?” Nineteen years later, it is clear that the answer is an unqualified “Yes!”

Full Circle 2012: Unexpected Art, the annual celebration of Matheny’s Arts Access Program, was held on Saturday, December 1, in the Robert Schonhorn Arts Center and was dedicated to the man who, along with then medical director Gabor Barabas MD, conceived of and created this unique program, which enables people with disabilities to create fine art, assisted by professional artist-facilitators.

Schonhorn, who died earlier this year, recognized the creative possibilities that were trapped inside the bodies of people with disabilities. “My father would have been so proud,” said Erica Schonhorn Gorman, Schonhorn’s daughter, as she and his grandson Max Gorman, accepted a special plaque from Steve Proctor, Matheny president and CEO.

Guests at Full Circle attended a visual arts exhibit and reception in the gallery before viewing a stage presentation that included a video tribute to Schonhorn as well as several examples of prose, poetry, drama and dance created by Arts Access artists. A dessert reception followed.

Corporate sponsors were: The Provident Bank Foundation, Day Pitney, LLP, Affinity Federal Credit Union and The Angeletti Group. Food and beverage donors were: Café Azzurro and cocoLuxe fine pastries, Peapack; Gladstone Tavern, Gladstone; 3West, Basking Ridge; and Village Office Supply, Somerset.

Matheny president Steve Proctor presents a special plaque to Erica Schonhorn Gorman and Max Gorman.

For the past several years, members of the Bernardsville, NJ, Rotary Club have donated and grilled hamburgers and hot dogs for guests at the picnic following Miles for Matheny, our annual fundraiser and community event held every April.

On November 13, Janice Kriegman, Matheny development associate, attended the Rotary Club’s monthly meeting at the Olde Mill Inn in Basking Ridge, NJ, and presented club president Dr. Brian Wallace with a special Certificate of Recognition in appreciation of the group’s support.

Miles for Matheny returned downtown in 2012.

For the fourth consecutive year, Matheny has won a PeRCy Award, presented by the Healthcare Planning & Marketing Society of New Jersey to recognize the best in New Jersey healthcare planning, marketing and public relations programs. Matheny has been selected as a co-winner for Best Use of Social Media in Healthcare. Our entry, “Returning Miles for Matheny Downtown,” demonstrated how social media helped galvanize community support to block a small group of neighbors from preventing our move of Miles for Matheny back to downtown Peapack from Natirar Park.

The PeRCy Awards will be presented at HPMSNJ’s annual meeting on December 7 at the National Conference Center in East Windsor. Last year, Matheny won for Best Small Hospital Public Relations/Media Placement for our partnership with CBS New York television and radio stations to promote Miles for Matheny.

Matheny students Natalie Tomastyk and Bianca Mathis, performing with music therapy intern Betsy Barone.

The Matheny Muses, a young group of eclectic artists and performers from Matheny’s choir, performed their rendition of Owl City and Carley Rae Jepson’s “Good Time” at the 10th annual Express Yourself-New Jersey event held Sunday, November 11 by ArtWorks: The Naomi Cohain Foundation at the Montclair Art Museum.

ArtWorks provides children and young adults suffering from chronic and life-threatening illnesses, and their siblings, access to creative and performing arts programs in a safe environment that encourages healing, communication, self-expression and personal development. Express Yourself is a creative and performing art exhibition that provides these children and young adults with an open and loving forum to express themselves—through singing, dancing, reciting poetry, playing instruments and standing proudly by their works of art.

Although the Matheny students are all in wheelchairs, they feel music reminds them not to sit in defeat but to move to the beat, making them feel as if they were back on their feet. The Music Therapy program at Matheny uses various types of music to positively impact students’ and patients’ cognitive, physical, emotional and social skills, helping them realize their potential in society.

We are so grateful to our food and beverage sponsors for Full Circle 2012: Unexpected Art. All five of those graciously planning to donate food and beverages at the originally scheduled Full Circle, on November 3, have come forward to say they are still on board now that the date has been changed to December 1. And this, despite losing business as a result of a power outage during Hurricane Sandy.

We are very appreciative of the incredible generosity of Café Azzurro and cocoLuxe fine pastries, Peapack; Gladstone Tavern, Gladstone; 3 West, Basking Ridge; and Village Office Supply, Somerset.

From left, nursing staff members Tammy Culp, Lexie McKevitt, Pearl Chiang, Janice Lori and Nancy Bonello.

Matheny nurse Pearl Chiang’s October art exhibit, “Life is Beautiful,” at The Bridgewater, NJ, library has ended, but the memories of it will linger for those who attended. As previously reported, the display consisted of 30 paintings, which were rotated because the space available could only hold 10.

The exhibit was supported by Chiang’s many coworkers among the Matheny nursing staff and was highlighted by visits from her parents and other relatives from her native Taiwan. Chiang moved to the United States from Taiwan 22 years ago.

In the fall of 2011, she had a 38-painting exhibit at the Art Yards Café in Taipei. And she recently enlisted a group of high school students to assist her in completing a mural, “Paradise,” in the children’s dining room at Matheny.