Who is cared for in our special hospital?

Dr. Gary E. Eddey

By Gary E. Eddey, MD

Only a very small percentage of individuals with significant disabling conditions are candidates for admission to Matheny. The medical and treatment needs of our inpatients are extraordinary. More than 2,200 medical and treatment administrations occur daily for our 101 patients, and each patient has an average of 15 diagnoses.

For example, the most common admitting diagnosis to our hospital is cerebral palsy, spastic quadriplegia. However, if the patient only had this diagnosis, he or she would certainly not be appropriate or qualify for admission. The majority of our inpatients have serious musculoskeletal conditions leading to specialized position needs, highly customized seating and mobility requirements and post operative treatment needs. Our inpatients have moderate to significant forms of dysphagia (swallowing difficulties), necessitating thorough evaluation of head and neck positioning to decrease risk of aspiration. Approximately 90% of our patients have dysarthia (for our patient population that means they are non-verbal).

Respiratory needs are present in 40% of our inpatients, who are cared for by an advanced respiratory therapy department. Matheny has an inpatient pharmacy that enhances patient care due to its inclusion in the interdisciplinary team process. Patient care is dramatically improved due to the immediate delivery of medications, accurate order fulfillment and real time communication among physicians, nurses and pharmacists.

Our hospital has become a national resource for the care of patients with Lesch-Nyhan Disease (LND), a rare but well-known neurological disorder that has an extremely complex medical and behavioral habilitative treatment protocol. Healthcare providers around the United States who serve persons with Lesch-Nyhan Disease know Matheny and call upon Matheny’s clinical staff and its published research for guidance in serving this very complex population.

All of Matheny’s inpatients have significant physical limitations, in addition to their medical complexities, that require constant or close monitoring. Those individuals appropriate for community care, as opposed to special hospital inpatients, may require daily care, but rarely are in need of constant or close monitoring.

(Third in a series of articles by Gary E. Eddey, MD, Vice President and Chief Medical Officer at Matheny, on the habilitative healthcare model).

Cyclists prepare to take off on one of the courses in 2012.

The cycling routes at Miles for Matheny, our annual fundraiser and community event, have been designed by the Bedminster Flyers Cycling Club to offer every level of cyclist a rewarding challenge. The cycling courses range from a 10-mile family-friendly ride to the 50-mile Hills of Attrition course with steep climbing hills. In between are a 25-mile ride, 35-mile ride and a regular 50-mile ride.

For the 11th consecutive year, Bedminster, NJ-based Peapack-Gladstone Bank will be the Cycling Sponsor and will make two of its branches available for rest stops. “Peapack-Gladstone Bank,” says Denise Pace-Sanders, vice president brand and marketing director, “is proud to be a continuing supporter and Cycling Sponsor for Miles for Matheny. It gives us great pleasure to assist in raising money for such a worthy cause and for an organization that is very much a part of our community.”

The 16th annual Miles for Matheny will be held on Sunday, April 21 at Liberty Park in Peapack, NJ. The Cycling rides begin at 9:30 a.m. Other activities include the Lu Huggins Wheelchair Walk, a USATF-certified 5K Road Race, a Kids Fun Run and The Friends of Matheny “Breakfast of Champions” followed by luncheon refreshments in the park. All funds raised at Miles will help support the Matheny Center of Medicine and Dentistry, which provides medical, dental and therapy care to Matheny’s inpatients and to people with disabilities in communities throughout New Jersey.

Other major sponsors are: Poses Family Foundation, title sponsor; Partlow Insurance Agency; Porzio Bromberg & Newman P.C.; Affinity Federal Credit Union; and WCBS-TV and WCBS Newsradio 880. To find out how you can be part of the fun-filled and uplifting event, log onto www.milesformatheny.org or call (908) 234-0011, ext. 260.

Untitled by Ellen Kane will be one of the paintings on display at MONDO.

Matheny’s Arts Access Program will be participating in two important arts events in March in New Jersey. Arts Access is joining several other organizations to be part of the ReelAbilities New Jersey Disabilities Film Festival, and Arts Access artists will have their work shown and heard at a special presentation at the MONDO Summit building in Summit, NJ.

The ReelAbilities Film Festival is the largest festival in the country dedicated to promoting awareness and appreciation of the lives, stories and artistic expressions of people with different disabilities. At 5:30 p.m. on Friday, March 15, the gallery in the Robert Schonhorn Arts Center at Matheny will be open for viewing of visual art created by Arts Access artists. At 6 p.m., a New Jersey edition of the ReelAbilities Festival will open with a short film about Arts Access, followed by Wampler’s Ascent, a feature film about Steve Wampler, who has cerebral palsy and needs to do 20,000 pull-ups in order to climb the El Capitan Mountain in Yosemite National Park. In 2002, Wampler founded a camp for children with disabilities, and his climb will be dedicated to the idea that kids with disabilities can do anything they set their minds to. After the film, there will be a 30-minute discussion with the Wampler family and other panelists.

Admission is $10; all proceeds will benefit Matheny. For more information, call (908) 234-0011, ext. 765, or email haeree@artsaccessprogram.org.

On Sunday, March 17, from 2-4 p.m., Arts Access visual art and written works will be on display and presented at the MONDO Summit building, a 94-year-old reconstructed brick building which is dedicated to all kinds of art: craftsmanship, culinary arts, visual arts, performing arts and literary arts. Mondo is located at 426 Springfield Ave. in Summit, and admission is free.

Dr. Gary E. Eddey.

By Gary E. Eddey, M.D.

For individuals with complex developmental disabilities, who are totally dependent on care with a lifetime ahead of them, an inpatient habilitation healthcare model may be the most appropriate healthcare approach.

What distinguishes this individual from someone who can be adequately cared for in the community? Here are four determining factors for recommending inpatient habilitation care:

• The chronic neurologic disabling condition is accompanied by many other healthcare disorders.

• Significant musculoskeletal conditions impact mobility.

• The patient is totally dependent for care.

• Social/family supports are unable to keep the patient from improving or even maintaining function.

The above issues significantly increase the care-load burden of the patient. These patients require much closer monitoring throughout the day than those who can live in the community because they have multiple associated clinical conditions requiring the most complex medical, physical, therapeutic and nursing care needs.

At Matheny, 100% of inpatients are complex and ambulatory-dependent. Almost all have 15 to 20 accompanying diagnoses in addition to their primary underlying chronic neurologic disability. The Matheny inpatient habilitation healthcare model is the essential standard of care for all those with significant developmental disabilities and should be the standard of care for all persons with developmental disabilities who are medically  complex.

(Second in a series of articles by Gary E. Eddey, MD, Vice President and Chief Medical Officer at Matheny, on the habilitative healthcare model).

Adult patient Jessica Evans and walking partner.

Named after the late Lu Huggins, a co-founder of Miles for Matheny, the Lu Huggins Wheelchair Walk is a 1.5 mile walk through downtown Peapack, NJ. Members of the community are invited to walk with Matheny students and patients in an event that is truly a celebration of the abilities of those who are physically challenged. Our students and patients look forward to this walk every year, as Miles is “their” day. Join us for what we promise will be a very rewarding experience on Sunday, April 21.

This year, Partlow Insurance Agency will be the Lu Huggins Wheelchair Walk Sponsor at Miles for Matheny. Partlow, headquartered in Winchester, VA, is recognized nationally as the leader in insuring nonprofit social service and special education institutions.

Other activities at Miles for Matheny include a USATF-certified 5K Road Race, five different Cycling routes, a Kids Fun Run and The Friends of Matheny “Breakfast of Champions” followed by luncheon refreshments in Liberty Park. All funds raised at Miles will help support the Matheny Center of Medicine and Dentistry, which provides medical, dental and therapy care to Matheny’s inpatients and to people with disabilities in communities throughout New Jersey.

Other major sponsors are: Poses Family Foundation, title sponsor; Peapack-Gladstone Bank; Porzio Bromberg & Newman P.C.; Affinity Federal Credit Union; and WCBS-TV and WCBS Newsradio 880.

To find out how you can be part of this fun-filled and uplifting event, log onto www.milesformatheny.org or call (908) 234-0011, ext. 260.

Adult patient Chris Saglimbene with the NJ Devils mascot.

Kids Fun Run 2012.

Everyone’s a winner in the Kids Fun Run at Miles for Matheny, which introduces children to running for a cause.

The run is designed especially for the youngest racing enthusiasts. There are four short sprints: 50 yards for ages 3-4; 75 yards, ages 5-6; 100 yards, ages 7-8; and 150 yards, ages 9-10. All Fun Run participants receive a winner’s medal.

The 16th annual Miles for Matheny community event and fundraiser will be held on Sunday, April 21, at Liberty Park in Peapack, NJ. The Fun Run begins at 11:30 a.m. Other activities include the Lu Huggins Wheelchair Walk, a USATF-certified 5K race and five different cycling routes. All funds raised at the event will help support the Matheny Center of Medicine and Dentistry, which provides medical, dental and therapy care to Matheny’s inpatients and to people with disabilities in the community.

This year Porzio Bromberg & Newman P.C., Morristown, NJ-based attorneys at law, will again be the Kids Fun Run sponsor. Other major sponsors are: Poses Family Foundation, title sponsor; Partlow Insurance Agency; Peapack-Gladstone Bank; Affinity Federal Credit Union; and WCBS-TV and WCBS Newsradio 880.

To find out how you can be part of this fun-filled and uplifiting event, log onto www.milesformatheny.org.

Celebrating after the races.

Affinity Federal Credit Union, headquartered in Basking Ridge, NJ, will again be the Entertainment Sponsor at Miles for Matheny, our fundraiser and community event being held Sunday, April 21, at Liberty Park in Peapack, NJ.

Several Affinity executives recently visited Matheny. From left: Matheny president Steve Proctor, Affinity Foundation development specialist Ann Geller, Affinity relationship manager Jennifer Oakley, external affairs & financial education specialist Grant Gallagher, member experience officer Salvatore Galati, Foundation executive director Beth Degnan and Eileen Murray, director of Matheny’s Arts Access Program.

Activities at Miles include the Lu Huggins Wheelchair Walk, a USATF-NJ-sanctioned 5K Road Race, five different Cycling routes, a Kids Fun Run and The Friends of Matheny’s “Breakfast of Champions” along with luncheon refreshments in the park. All money raised at Miles will benefit the Matheny Center of Medicine and Dentistry, which provides medical, dental and therapy care to Matheny inpatients and to people with disabilities in communities throughout New Jersey.

Affinity, New Jersey’s largest credit union, is a member-owned, not-for-profit, full-service financial institution with 15 branches throughout the state and more than 135,000 members from more than 2,000 businesses and organizations.

Other major sponsors are: Poses Family Foundation, title sponsor; Partlow Insurance Agency; Peapack-Gladstone Bank; Porzio Bromberg & Newman; and WCBS-TV and WCBS Newsradio 880.

To find out how you can become part of this fun and uplifting event, log onto www.milesformatheny.org or call (908) 234-0011, ext. 260.

Affinity Foundation executive director Beth Degnan, left, and Foundation development specialist Ann Geller visit with adult patient and Arts Access artist Luis Rodriguez.

By Gary E. Eddey, MD

The term “habilitation” refers to an approach to healthcare services for individuals with developmental disabilities. It includes comprehensive medical, nursing, therapeutic and educational care, is designed for children and adults and can be provided in either a community or inpatient setting. Habilitation services are essential for those with congenital disabilities, or disabilities acquired early in life, and are often best provided in a community setting for the majority of individuals with developmental disabilities.

Habilitation focuses on the individual, improving his/her functioning and overall health in a supportive environment. It takes into consideration needs in a wide variety of areas including social services, psychology, psychiatry, recreation, therapies, integrated medical and nursing services and, depending on age, educational services. Research confirms the two-way relationship between a full and active lifestyle and physical health for persons with disabilities.

A successful habilitative model must maximize potential at all points along the lifespan continuum. With its emphasis on an integrated approach to care and services, the habilitative model reverses or impedes a decline in health among this at-risk population.

The goal of habilitation is to normalize the life of the individual with developmental disabilities as well as his/her family. Families are a critical element in the care and support of people with disabilities. They are advocates and guardians in most instances. However, the abilities and needs of families must continually be assessed throughout the life cycle. Frequently families can and do provide care when the individual with disabilities is young. This becomes more difficult and, impossible for some, as the individual with disabilities ages.

(The first of several articles by Gary E. Eddey, MD, Vice President and Chief Medical Officer at Matheny, on the habilitative healthcare model).

Kaila’s Krew, one of many teams formed by Matheny families.

A great way to raise money to support Miles for Matheny, our annual fundraiser and community event, is to start a team for your school, church, book club, running club or friends and family. It’s a fun way to spend the day together at the event and a great way to help get more donations. You can create a team registration page, train together, set team fundraising goals or even make it a “friendly” competition among your teammates to see who can raise the most money.

Team fundraising tips are offered online at www.milesformatheny.org. You can also call Patricia Cats at (908) 234-0011, ext. 260, or email her at pcats@matheny.org.

Miles for Matheny is being held Sunday, April 21, at Liberty Park in downtown Peapack, NJ. All proceeds from this event will benefit the Matheny Center of Medicine and Dentistry, which provides medical, dental and therapy care to Matheny inpatients and people with disabilities in the community. Activities include:  five Cycling Routes, a USATF-certified 5K Road Race, Kids Fun Run, the Lu Huggins Wheelchair Walk and The Friends of Matheny “Breakfast of Champions”, followed by luncheon refreshments in the park.

Major Miles sponsors are: Poses Family Foundation, title sponsor; Porzio Bromberg & Newman, P.C., attorneys at law; Peapack-Gladstone Bank; Partlow Insurance Agency; Affinity Federal Credit Union; and WCBS-TV and WCBS Newsradio 880.

Running team from RDA Fitness in Byram, NJ.

5K and Kids Fun Run runners love to finish their race and cheer on the wheelchair participants as they approach the finish line.

A great way to raise money for Miles for Matheny, our annual fundraiser and community event, is to create a personal webpage on the Miles for Matheny website. You can upload photos of you and your teammates, set fundraising and training goals and send emails to friends and family asking them to support your efforts.

Plus, you can send updates, which serve as gentle reminders, as the event day gets closer. And, once the event is over, you can continue to fundraise by sending photos and notes to let people know how you did as a runner, cyclist or walking partner.

Miles is being held Sunday, April 21, at Liberty Park in downtown Peapack. The signature activity is the Lu Huggins Wheelchair Walk in which more than 100 wheelchair participants, with walking partners, travel 1.5 miles around town. There’s also a USATF-NJ sanctioned 5K race, five different Cycling routes and a Kids Fun Run. All money raised will help support the Matheny Center of Medicine and Dentistry, which provides medical, dental and therapy care to Matheny inpatients and people with disabilities in communities throughout New Jersey.

To get more information and to find out how you can be part of this uplifting event, log onto www.milesformatheny.org or call (908) 234-0011, ext. 260.

Braving the elements at Miles for Matheny 2012.

The late Lu Huggins was concerned that Matheny students and patients “had no idea what life was like in the real world. And no one in the community ever saw them.” So in 1998, she helped create the first Miles for Matheny, which included a wheelchair walk and one cycling ride.

On Sunday, April 21, the 16th annual Miles for Matheny will be held at Liberty Park in downtown Peapack, NJ, and the Lu Huggins Wheelchair Walk will, of course, be the centerpiece. Friends and family members will be able to enjoy walking alongside more than 100 Matheny children and adults, who “wheel” through the streets of downtown Peapack to the cheers of community members and other supporters.

All funds raised at Miles for Matheny will benefit the Matheny Center of Medicine and Dentistry, which provides medical, dental and therapy care to Matheny inpatients and to people with disabilities in the community. Other activities, in addition to the Wheelchair Walk, are a USAF-sanctioned 5K Race, five different Cycling routes and a Kids Fun Run.

To find out how you can be part of this fun and uplifting event, log onto www.milesformatheny.org or call (908) 234-0011, ext. 260.

Darlene Tammara uses picture symbols to make a story more understandable to student Deborah Eike. At left is occupational therapist Debbie Goodheart.

Darlene Tammara, a teacher at the Matheny School, has been selected as one of the “Teachers Who Rock” by Greater Media radio stations WDHA 105.5FM and WMTR 1250AM. The stations annually recognize 24 outstanding teachers in New Jersey for their important contribution to society. Each Friday, two winners are announced, and their stories are read on both stations’ morning shows. Tammara’s name was announced on Friday, January 25. She and the other 23 honorees will be feted at a dinner on April 23 at Ravello Elegant Weddings & Banquets in East Hanover, NJ.

Tammara teaches a transition class at Matheny, meaning she instructs older students in life skills that will help them after they graduate. Four years ago, she started the Tea Time Café, a snack bar managed by Matheny students for Matheny employees. Her students count money from Tea Time sales, enter the results on a special math worksheet and make bank deposits.  The students also work on clerical jobs for Matheny and fill packages for Operation Shoebox, an organization that sends care packages to U.S. troops deployed overseas.

A resident of Bridgewater, NJ, Tammara appreciates Matheny’s trans-disciplinary approach, “where therapists work in the classroom with teachers. We all work together. I feel very strongly about that – it’s such a collaborative effort.” Her colleagues apparently feel the same way about Tammara as they nominated her Matheny’s educator of the year for the 2012-2013 school year.