Please join us in thanking the Klein Family for sharing their powerful story in this video from the Rare Access Action Project (RAAP). We are so grateful to have Rayne and her family as part of our Matheny community, and we hope their honesty openness can help other families living with rare diseases.
“RAAP is a coalition of patient and life sciences stakeholders that explores creative policy solutions to address structural issues in access and coverage. Our priority is to help ensure rare disease patients have access to the care and treatments that they need.”
